What Now?

This may be the question you're asking yourself after the difficult news of an AADC diagnosis for your loved one. Fortunately, there are steps you can take right now, where you are.

Register with the AADC Family Network

By registering with our family network, we will be able to keep you in communication with other families who are going through the same trials and victories you are. You are not alone, and we're here to keep you connected with those also battling this rare disease. When you register, you can also apply for funding to get assistance with financial hardships you may be facing. Register here.

Stay Informed

Though AADC is an extremely rare disease with only a few officially diagnosed cases worldwide, the research is growing exponentially, especially in recent years. Use our list of helpful links below as a navigation bar for more information, and share them with others to spread awareness and understanding of this disorder.

Consider Donating

If your or someone you know contributes to the ALADD Foundation monetarily, you will be helping us to further research and to get closer to finding a cure for AADC.